张喆、杨天翔
朱一龙、杨恩又
金世佳、邱泽
张若昀、钟楚曦
尹子维、连凯
海清、陈永胜
彭于晏、佟丽娅
张艺兴、金晨
艾塔娜·桑切斯-希洪、Cumelen Sanz
谢霆锋、张学友
The Boy Whose Skin Fell Off(2004)
未知
时长：未知
上映时间：2004
语言：英语
地区：英国
演员： Edna Kennedy Jonny Kennedy 内尔·麦克安德鲁
更新时间：
资源状态：
简介：Ayearago,36-year-oldJonnyKennedydied.HehadaterriblegeneticconditioncalledDystrophicEpidermolysisBullosa(EB)-wh……更多>>
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《The Boy Whose Skin Fell Off》The Boy Whose Skin Fell Off》剧情内容介绍
《The Boy Whose Skin Fell Off》
剧情内容介绍
The Boy Whose Skin Fell Off
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his ...
《The Boy Whose Skin Fell Off》评价
Robert 2011-12-18
这是一部用一个小时就能看完，却大概一生也摆脱不掉的纪录片。那种阴影远远不止于**的不安和心理的恐惧。我们的生命会，也本该因为世间存在这样的苦痛而变得沉重一些，脆弱一些。